Part E—National Family Caregiver Support Program
Prior Provisions
A prior part E, consisting of
A prior part F of this subchapter, consisting of
A prior part G of this subchapter consisting of
Part Referred to in Other Sections
This part is referred to in
subpart i—caregiver support program
Subpart Referred to in Other Sections
This subpart is referred to in
§3030s. Definitions
In this subpart:
(1) Child
The term "child" means an individual who is not more than 18 years of age.
(2) Family caregiver
The term "family caregiver" means an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual.
(3) Grandparent or older individual who is a relative caregiver
The term "grandparent or older individual who is a relative caregiver" means a grandparent or stepgrandparent of a child, or a relative of a child by blood or marriage, who is 60 years of age or older and—
(A) lives with the child;
(B) is the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregiver of the child; and
(C) has a legal relationship to the child, as such legal custody or guardianship, or is raising the child informally.
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Short Title
For short title of this part as the "National Family Caregiver Support Act", see section 371 of
§3030s–1. Program authorized
(a) In general
The Assistant Secretary shall carry out a program for making grants to States with State plans approved under
(1) for family caregivers; and
(2) for grandparents or older individuals who are relative caregivers.
(b) Support services
The services provided, in a State program under subsection (a) of this section, by an area agency on aging, or entity that such agency has contracted with, shall include—
(1) information to caregivers about available services;
(2) assistance to caregivers in gaining access to the services;
(3) individual counseling, organization of support groups, and caregiver training to caregivers to assist the caregivers in making decisions and solving problems relating to their caregiving roles;
(4) respite care to enable caregivers to be temporarily relieved from their caregiving responsibilities; and
(5) supplemental services, on a limited basis, to complement the care provided by caregivers.
(c) Population served; priority
(1) Population served
Services under a State program under this subpart shall be provided to family caregivers, and grandparents and older individuals who are relative caregivers, and who—
(A) are described in paragraph (1) or (2) of subsection (a) of this section; and
(B) with regard to the services specified in paragraphs (4) and (5) of subsection (b) of this section, in the case of a caregiver described in paragraph (1), is providing care to an older individual who meets the condition specified in subparagraph (A)(i) or (B) of section 3002(28) 1 of this title.
(2) Priority
In providing services under this subpart, the State shall give priority for services to older individuals with greatest social and economic need,2 (with particular attention to low-income older individuals) and older individuals providing care and support to persons with mental retardation and related developmental disabilities (as defined in section 102 of the Developmental Disabilities Assistance and Bill of Rights Act 1 (
(d) Coordination with service providers
In carrying out this subpart, each area agency on aging shall coordinate the activities of the agency, or entity that such agency has contracted with, with the activities of other community agencies and voluntary organizations providing the types of services described in subsection (b) of this section.
(e) Quality standards and mechanisms and accountability
(1) Quality standards and mechanisms
The State shall establish standards and mechanisms designed to assure the quality of services provided with assistance made available under this subpart.
(2) Data and records
The State shall collect data and maintain records relating to the State program in a standardized format specified by the Assistant Secretary. The State shall furnish the records to the Assistant Secretary, at such time as the Assistant Secretary may require, in order to enable the Assistant Secretary to monitor State program administration and compliance, and to evaluate and compare the effectiveness of the State programs.
(3) Reports
The State shall prepare and submit to the Assistant Secretary reports on the data and records required under paragraph (2), including information on the services funded under this subpart, and standards and mechanisms by which the quality of the services shall be assured.
(f) Caregiver allotment
(1) In general
(A) From sums appropriated under
(B) In determining the amounts allotted to States from the sums appropriated under
(C) The number of individuals 70 years of age or older in any State and in all States shall be determined by the Assistant Secretary on the basis of the most recent data available from the Bureau of the Census and other reliable demographic data satisfactory to the Assistant Secretary.
(2) Minimum allotment
(A) The amounts allotted under paragraph (1) shall be reduced proportionately to the extent necessary to increase other allotments under such paragraph to achieve the amounts described in subparagraph (B).
(B)(i) Each State shall be allotted ½ of 1 percent of the amount appropriated for the fiscal year for which the determination is made.
(ii) Guam and the Virgin Islands of the United States shall each be allotted ¼ of 1 percent of the amount appropriated for the fiscal year for which the determination is made.
(iii) American Samoa and the Commonwealth of the Northern Mariana Islands shall each be allotted 1/16 of 1 percent of the amount appropriated for the fiscal year for which the determination is made.
(C) For the purposes of subparagraph (B)(i), the term "State" does not include Guam, American Samoa, the Virgin Islands of the United States, and the Commonwealth of the Northern Mariana Islands.
(g) Availability of funds
(1) Use of funds for administration of area plans
Amounts made available to a State to carry out the State program under this subpart may be used, in addition to amounts available in accordance with
(2) Federal share
(A) In general
Notwithstanding
(B) Non-Federal share
The non-Federal share of the cost shall be provided from State and local sources.
(C) Limitation
A State may use not more than 10 percent of the total Federal and non-Federal share available to the State to provide support services to grandparents and older individuals who are relative caregivers.
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References in Text
Section 102 of the Developmental Disabilities Assistance and Bill of Rights Act, referred to in subsec. (c)(2), is section 102 of
Section Referred to in Other Sections
This section is referred to in
1 See References in Text note below.
§3030s–2. Maintenance of effort
Funds made available under this subpart shall supplement, and not supplant, any Federal, State, or local funds expended by a State or unit of general purpose local government (including an area agency on aging) to provide services described in
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Section Referred to in Other Sections
This section is referred to in
subpart ii—national innovation programs
§3030s–11. Innovation grant program
(a) In general
The Assistant Secretary shall carry out a program for making grants on a competitive basis to foster the development and testing of new approaches to sustaining the efforts of families and other informal caregivers of older individuals, and to serving particular groups of caregivers of older individuals, including low-income caregivers and geographically distant caregivers and linking family support programs with the State entity or agency that administers or funds programs for persons with mental retardation or related developmental disabilities and their families.
(b) Evaluation and dissemination of results
The Assistant Secretary shall provide for evaluation of the effectiveness of programs and activities funded with grants made under this section, and for dissemination to States of descriptions and evaluations of such programs and activities, to enable States to incorporate successful approaches into their programs carried out under this part.
(c) Sunset provision
This section shall be effective for 3 fiscal years after November 13, 2000.
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Section Referred to in Other Sections
This section is referred to in
§3030s–12. Activities of national significance
(a) In general
The Assistant Secretary shall, directly or by grant or contract, carry out activities of national significance to promote quality and continuous improvement in the support provided to family and other informal caregivers of older individuals through program evaluation, training, technical assistance, and research.
(b) Sunset provision
This section shall be effective for 3 fiscal years after November 13, 2000.
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Section Referred to in Other Sections
This section is referred to in